{"id":160,"date":"2023-05-01T17:53:03","date_gmt":"2023-05-01T17:53:03","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2023\/05\/01\/2023-5-1-darren-12-receives-medical-device-from-rawf\/"},"modified":"2023-08-22T15:25:41","modified_gmt":"2023-08-22T15:25:41","slug":"2023-5-1-darren-12-recibe-dispositivo-medico-de-rawf","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2023\/05\/01\/2023-5-1-darren-12-receives-medical-device-from-rawf\/","title":{"rendered":"Darren (12) recibe un dispositivo m\u00e9dico de RAWF"},"content":{"rendered":"<div class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<p><span style=\"color: var(--primary-text); font-size: inherit; white-space-collapse: preserve;\">Recientemente, la Fundaci\u00f3n Raymond A. Wood proporcion\u00f3 un analizador de sangre a Jialin, tambi\u00e9n conocido como Darren, para ayudar a la familia a gestionar sus cuidados mientras se recupera de la operaci\u00f3n de un tumor cerebral que le provoc\u00f3 m\u00faltiples derrames cerebrales.<\/span><\/p>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Darren, de 12 a\u00f1os, es descrito por su madre, Li Li, como un ni\u00f1o feliz en todo momento. Le diagnosticaron autismo muy joven, pero era sociable y tranquilo, le encantaba viajar y tocar el piano, lo que le ayudaba con su motricidad fina.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Recib\u00eda muchas ayudas y devolv\u00eda m\u00e1s\", dice Li Li. \"Compr\u00f3 una m\u00e1quina de conos de nieve y vend\u00eda conos de nieve en sus vacaciones de verano para ganar cien d\u00f3lares y as\u00ed hacer 'rica' a nuestra familia\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">A finales de 2018, a Darren le diagnosticaron un craneofaringioma. Tras el tratamiento, Darren sufri\u00f3 un derrame cerebral masivo que merm\u00f3 gravemente sus funciones.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Darren era un ni\u00f1o totalmente funcional antes de la operaci\u00f3n\", nos cuenta Li Li. \"El mayor reto es su p\u00e9rdida de visi\u00f3n y de lenguaje y movilidad debido a los m\u00faltiples accidentes cerebrovasculares sufridos tras la cirug\u00eda\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Durante una larga estancia en el hospital, Darren, que tambi\u00e9n padece diabetes ins\u00edpida (DI), la incapacidad del cerebro para producir la hormona antidiur\u00e9tica vasopresina que provoca desequilibrios en los fluidos corporales, tuvo que someterse a controles peri\u00f3dicos de sodio. Los niveles de sodio en sangre fuera de rango, como consecuencia de los desequilibrios de fluidos, pueden ser mortales. El endocrin\u00f3logo que le atendi\u00f3 abog\u00f3 por que la familia recibiera un analizador de sangre port\u00e1til en el momento del alta para ayudarles a gestionar sus cuidados.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Como Darren perdi\u00f3 la lengua y est\u00e1 conectado a una sonda de alimentaci\u00f3n, no sabemos si necesita agua\", explica Li Li. \"Tenemos que comprobarlo regularmente para asegurarnos de que todo va bien\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">La Fundaci\u00f3n Raymond A. Wood se encarg\u00f3 de que la familia recibiera este dispositivo el mismo d\u00eda que volv\u00edan a casa del hospital.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\"Esos primeros d\u00edas en casa son tan abrumadores\", dijo Amy Wood, directora ejecutiva de RAWF y cuidadora de un superviviente de craneofaringioma con DI dif\u00edcil. \"Quer\u00edamos asegurarnos de que tuvieran esto a mano para aliviar un poco el reto de coordinar los cuidados en casa\".<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Los analizadores de sangre son costosos y no est\u00e1n cubiertos por los seguros debido a su uso no indicado. RAWF trabaja para recaudar fondos que permitan proporcionar a las familias estos dispositivos que salvan vidas. Para ayudarnos a continuar esta importante labor, <a href=\"https:\/\/www.rawoodfoundation.org\/es\/hacer-un-donativo\/\">considere la posibilidad de hacer un donativo hoy mismo.<\/a><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Recientemente, la Fundaci\u00f3n Raymond A. Wood proporcion\u00f3 un analizador de sangre a Jialin, ... <a title=\"Darren (12) recibe un dispositivo m\u00e9dico de RAWF\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2023\/05\/01\/2023-5-1-darren-12-receives-medical-device-from-rawf\/\" aria-label=\"Leer m\u00e1s sobre Darren (12) recibe un dispositivo m\u00e9dico de RAWF\">Seguir leyendo<\/a><\/p>","protected":false},"author":6,"featured_media":161,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21],"tags":[],"class_list":["post-160","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Darren (12) Receives Medical Device from RAWF - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2023\/05\/01\/2023-5-1-darren-12-recibe-dispositivo-medico-de-rawf\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Darren (12) Receives Medical Device from RAWF - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Recently, the Raymond A. Wood Foundation provided a blood analyzer to Jialin, also known as ... Read more\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/es\/2023\/05\/01\/2023-5-1-darren-12-recibe-dispositivo-medico-de-rawf\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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