{"id":121,"date":"2021-11-22T19:40:00","date_gmt":"2021-11-22T19:40:00","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2021\/11\/22\/2021-11-16-meet-franklin-knowles-latest-rawf-handheld-blood-analyzer-recipient\/"},"modified":"2025-12-23T03:22:42","modified_gmt":"2025-12-23T03:22:42","slug":"2021-11-16-conozca-a-franklin-knowles-ultimo-receptor-del-analizador-de-sangre-portatil-rawf","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2021\/11\/22\/2021-11-16-meet-franklin-knowles-latest-rawf-handheld-blood-analyzer-recipient\/","title":{"rendered":"Conozca a Franklin Knowles, nuestro \u00faltimo receptor del analizador de sangre port\u00e1til"},"content":{"rendered":"<div class=\"\n          image-block-outer-wrapper\n          layout-caption-below\n          design-layout-inline\n          combination-animation-none\n          individual-animation-none\n          individual-text-animation-none\n        \" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"\n              sqs-block-image-figure\n              intrinsic\n            \" style=\"max-width: 3264px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element\n\n              has-aspect-ratio\n            \" style=\"position: relative; padding-bottom: 150.9803924560547%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/div>\n<\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Frankie Knowles, 10, Downingtown, PA<br \/>\npilomyxoid astrocytoma (PMA) survivor<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Ten-year-old Frankie Knowles of Pennsylvania was diagnosed with a <a href=\"http:\/\/pathology.jhu.edu\/pma\/what.php\"><span style=\"text-decoration: underline;\">pilomyxoid astrocytoma<\/span><\/a> when he was 6 years old. This is a rare, low-grade pediatric glioma occurring in the hypothalamic\/chiasmatic region of the brain that can have a high recurrence rate and chance of spreading.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Genetic sequencing of Frankie\u2019s tumor tissue revealed a mutation that makes his tumor prone to bleed. Frankie has survived two brain hemorrhages, first in March 2018 and again in May 2020.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">The second bleed left Frankie with many complications, but he continues to work hard to overcome challenges thrown his way. Through PT, he has not only learned to walk again, but has earned an advanced green belt in karate. Through speech services, he moved beyond typing his thoughts on a communication board and regained the use of his voice.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Despite the gains he has made, difficulty managing sodium levels has persisted long after almost all other complications have stabilized. In December 2020, his sodium dropped to 130 and Frankie had two hyponatremic seizures in the middle of the night. He was hospitalized for three weeks as a team of endocrinologists struggled to stabilize his sodium levels. Since then, he has been traveling to the hospital for labs, sometimes up to three times a week.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cUpon hearing Frankie was approved for a handheld blood analyzer, we were elated,\u201d said Frankie\u2019s mother, Erica. \u201cHaving this [device] means significantly fewer trips to the hospital, fewer port accesses and decreased risk of infection, and more time in school or just doing things that a typical 10-year-old <em>should <\/em>be doing. And certainly we hope to never have another hyponatremic seizure.\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">A sincere thank you to our donors who made it possible for Frankie\u2019s family to better manage his diabetes insipidus and blood sodium levels at home.<\/p>\n<p class=\"\" style=\"text-align: center; white-space: pre-wrap;\"><strong>We have more children like Frankie waiting for your help.<\/strong><\/p>\n<\/div>\n<div class=\"sqs-block-button-container sqs-block-button-container--center\" data-animation-role=\"button\" data-alignment=\"center\" data-button-size=\"medium\" data-button-type=\"primary\"><a class=\"sqs-block-button-element--medium sqs-button-element--primary sqs-block-button-element\" href=\"https:\/\/www.rawoodfoundation.org\/make-a-donation\/\">Donate Now<br \/>\n<\/a><\/div>\n","protected":false},"excerpt":{"rendered":"<p class=\"\">Conozca a Franklie Knowles, de 10 a\u00f1os, nuestro \u00faltimo receptor de un analizador de sangre port\u00e1til. A Frankie le diagnosticaron un astrocitoma pilomixoide (PMA) cuando ten\u00eda 6 a\u00f1os y las dificultades para controlar los niveles de sodio han persistido mucho despu\u00e9s de que se estabilizaran casi todas las dem\u00e1s complicaciones del tumor. Ha sufrido varios ataques de hiponatremia que han provocado hospitalizaciones.<\/p>","protected":false},"author":6,"featured_media":18067,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,1],"tags":[],"class_list":["post-121","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Meet Franklin Knowles, Our Latest Handheld Blood Analyzer Recipient - Raymond A. 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