{"id":109,"date":"2021-08-04T14:00:00","date_gmt":"2021-08-04T14:00:00","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2021\/08\/04\/2021-8-3-craniopharyngioma-survivor-azalea-age-2-receives-blood-analyzer\/"},"modified":"2025-10-14T06:50:18","modified_gmt":"2025-10-14T06:50:18","slug":"2021-8-3-azalea-superviviente-de-un-craneofaringioma-de-2-anos-recibe-un-analizador-de-sangre","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2021\/08\/04\/2021-8-3-craniopharyngioma-survivor-azalea-age-2-receives-blood-analyzer\/","title":{"rendered":"Azalea, de 2 a\u00f1os, superviviente de un craneofaringioma, recibe un analizador de sangre"},"content":{"rendered":"<div class=\"\n          image-block-outer-wrapper\n          layout-caption-below\n          design-layout-inline\n          combination-animation-none\n          individual-animation-none\n          individual-text-animation-none\n        \" data-test=\"image-block-inline-outer-wrapper\"><\/p>\n<figure class=\"\n              sqs-block-image-figure\n              intrinsic\n            \" style=\"max-width: 399px;\"><\/p>\n<div class=\"image-block-wrapper\" data-animation-role=\"image\">\n<div class=\"sqs-image-shape-container-element\n\n              has-aspect-ratio\n            \" style=\"position: relative; padding-bottom: 160.4010009765625%; overflow: hidden; -webkit-mask-image: -webkit-radial-gradient(white, black);\"><\/p>\n<p><noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1628000151569-BXF8D7J1FBG0JOK7PC5B\/image0+%281%29.jpeg\" alt=\"image0 (1).jpeg\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1628000151569-BXF8D7J1FBG0JOK7PC5B\/image0+%281%29.jpeg\" alt=\"image0 (1).jpeg\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1628000151569-BXF8D7J1FBG0JOK7PC5B\/image0+%281%29.jpeg\" data-image-dimensions=\"399x640\" data-image-focal-point=\"0.5,0.5\" data-load=\"false\" data-image-id=\"61094f979040ba66d60fa43b\" data-type=\"image\" \/><\/p>\n<\/div>\n<\/div>\n<\/figure>\n<\/div>\n<div class=\"sqs-html-content\">\n<p class=\"\" style=\"white-space: pre-wrap;\">Meet Azalea, 2, a silly music loving two year old who lives in Sacramento, California.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Azaleas parents started this journey with a couple of trips to the ER due to episodes of non-specific vomiting, and received the most devastating news a parent is ever prepared for. On the 14th of September 2020, Azalea was diagnosed with a very large craniopharyngioma for her tiny brain and body.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Before the diagnosis Azalea was a normal baby, meeting all milestones.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">According to Azalea\u2019s mom, Kirsten:<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cAfter five surgeries &#8211; one biopsy craniotomy and multiple shunts, there was no plan for the future and she was going blind. We flew her to Boston Children\u2019s, where she had a full resection the next day after arriving in their ER. Surgery had to be done in two parts over 17 hours. Excellent doctors saved her life. If her tumor wasn\u2019t removed she most likely would have died by Christmas.\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cAt Boston she had a pretty extensive stay \u2014 almost three months \u2014 due to many complications including seizures, p<span style=\"text-decoration: underline;\">osterior reversible encephalopathy syndrome (<\/span>PRES), vassospasms and large subdural fluid collections from the surgeries. She now has a shunt that she may not need her whole life, but time will tell.\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">As a result of the craniopharyngioma, Azalea developed diabetes insipidus (DI), [the brain\u2019s inability to manage the body\u2019s fluid balance]. With Azaleas age, management of DI is especially complicated as she also non-verbal for the most part. We are not sure if she drinks for thirst or comfort. We measure all ins and outs, but her sodium swings very easily, and to get a sodium test requires a trip to the lab on the other side of town and with closures due to holidays and the results can sometimes take more than six hours.\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cShe is home now and struggles daily with all the usual endocrine issues that come with this tumor, since she has no pituitary gland. But we are thankful everyday to have her and will continue to advocate for her and get her stronger.\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">The <a href=\"https:\/\/www.rawoodfoundation.org\/\" target=\"_blank\" rel=\"noopener\">Raymond A. Wood Foundation<\/a> provided the Music family with a handheld blood analyzer in July to allow for better care management of Azalea\u2019s fluid balance and sodium at home. \u00a0These devices are critical particularly for pediatric patients for keeping blood sodium levels in range. Out of range sodium can result in seizure, coma and could be fatal. Currently there is no FDA-approved way to test blood sodium at-home, however RAWF has initiated a project to develop a device for this application.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Providing these devices are only possible with donor support. <a href=\"https:\/\/www.rawoodfoundation.org\/make-a-donation\/\">Please consider a donation<\/a> to help families get the tools they need to better care for these critical patients.<\/p>\n<\/div>\n<div class=\"sqs-block-button-container sqs-block-button-container--left\" data-animation-role=\"button\" data-alignment=\"left\" data-button-size=\"medium\" data-button-type=\"primary\"><a class=\"sqs-block-button-element--medium sqs-button-element--primary sqs-block-button-element\" href=\"\/donate\"><br \/>\nDonate Now<br \/>\n<\/a><\/div>\n","protected":false},"excerpt":{"rendered":"<p class=\"\">Te presentamos a Azalea, una ni\u00f1a de dos a\u00f1os amante de la m\u00fasica que vive en Sacramento, California.<\/p>\n<p class=\"\">Los padres de Azalea comenzaron este viaje con un par de visitas a urgencias debido a episodios de v\u00f3mitos inespec\u00edficos, y recibieron la noticia m\u00e1s devastadora para la que un padre puede estar preparado. El 14 de septiembre de 2020, Azalea fue diagnosticada con un craneofaringioma muy grande en su peque\u00f1o cerebro y cuerpo.<\/p>","protected":false},"author":6,"featured_media":110,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[21,35,1],"tags":[],"class_list":["post-109","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blood-analyzer-recipient","category-craniopharyngioma","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Craniopharyngioma survivor, Azalea, age 2, receives blood analyzer - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2021\/08\/04\/2021-8-3-azalea-superviviente-de-un-craneofaringioma-de-2-anos-recibe-un-analizador-de-sangre\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Craniopharyngioma survivor, Azalea, age 2, receives blood analyzer - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Meet Azalea, 2, a silly music loving two year old who lives in Sacramento, California.Azaleas parents started this journey with a couple of trips to the ER due to episodes of non-specific vomiting, and received the most devastating news a parent is ever prepared for. 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