{"id":10,"date":"2017-05-11T14:14:36","date_gmt":"2017-05-11T14:14:36","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/2017\/05\/11\/2017-5-11-local-mom-takes-fight-for-brain-tumor-awareness-to-capitol-hill\/"},"modified":"2023-08-01T19:34:31","modified_gmt":"2023-08-01T19:34:31","slug":"2017-5-11-una-madre-local-lleva-la-lucha-por-la-concienciacion-sobre-los-tumores-cerebrales-a-la-colina-del-capitolio","status":"publish","type":"post","link":"https:\/\/www.rawoodfoundation.org\/es\/2017\/05\/11\/2017-5-11-local-mom-takes-fight-for-brain-tumor-awareness-to-capitol-hill\/","title":{"rendered":"El Director de la RAWF \"se dirige al Capitolio\""},"content":{"rendered":"<div class=\"sqs-html-content\">\n<p>Washington, D.C. - Amy Wood, directora de la Fundaci\u00f3n Raymond A. Wood, se uni\u00f3 al contingente de Maryland que acudi\u00f3 el martes a \"Head to the Hill\" con la National Brain Tumor Society para abogar por una legislaci\u00f3n que financie la investigaci\u00f3n sobre tumores cerebrales. Wood es madre de Alex, de 6 a\u00f1os, superviviente de un tumor cerebral y alumno de preescolar en la Ocean City Elementary School.<\/p>\n<p>Wood se reuni\u00f3 con los senadores de Maryland Ben Cardin y Chris Van Hollen y con el congresista Andy Harris para hablar de la Ley STAR del C\u00e1ncer Infantil de 2017. De aprobarse, esta ley ayudar\u00eda a estimular una investigaci\u00f3n m\u00e1s eficaz sobre los tumores cerebrales pedi\u00e1tricos y conducir\u00eda a mejores tratamientos que alargar\u00edan la vida y mejorar\u00edan la calidad de vida de los pacientes. El senador Van Hollen es copatrocinador del proyecto de ley.<\/p>\n<p>\"Alex lleva dos a\u00f1os sin c\u00e1ncer, pero nos enfrentamos a diario a los efectos de este tumor\", dice Wood. \"Esta es nuestra oportunidad de contar su historia con la esperanza de que ayude a otro ni\u00f1o que se enfrente a una batalla similar\".<\/p>\n<p>El a\u00f1o pasado, los tumores cerebrales se situaron por encima de la leucemia como la principal causa de muerte por c\u00e1ncer entre los ni\u00f1os de 0 a 19 a\u00f1os. Seg\u00fan la National Brain Tumor Society, hasta dos tercios de los supervivientes de c\u00e1ncer infantil sufren efectos tard\u00edos de la enfermedad o su tratamiento, como c\u00e1nceres secundarios y da\u00f1os org\u00e1nicos. La Ley STAR potenciar\u00eda la investigaci\u00f3n sobre estos efectos, mejorar\u00eda la colaboraci\u00f3n entre proveedores y establecer\u00eda un nuevo programa piloto para empezar a explorar modelos innovadores de atenci\u00f3n a los supervivientes de c\u00e1ncer infantil.<\/p>\n<p>La familia Wood, Shawn, Amy y Alex, constituy\u00f3 la Raymond A. Wood Foundation (RAWF) a finales de 2016. RAWF es una fundaci\u00f3n 501(c)(3) con la misi\u00f3n espec\u00edfica de proporcionar apoyo a la calidad de vida de los supervivientes de tumores cerebrales pedi\u00e1tricos.<\/p>\n<p>\"Hemos visto los retos a los que se enfrentan estos j\u00f3venes supervivientes tras el tratamiento y queda mucho trabajo por hacer para ayudarles a prosperar a lo largo de sus vidas\", dijo Wood. \"Ir hoy al Capitolio ha sido una experiencia incre\u00edble y me siento optimista de que hay esperanza en el futuro del tratamiento de los tumores cerebrales pedi\u00e1tricos y sus resultados\".<\/p>\n<p>Para apoyar la Ley STAR contra el c\u00e1ncer infantil, haga o\u00edr su voz y llame a sus representantes. Para m\u00e1s informaci\u00f3n sobre c\u00f3mo ayudar a los supervivientes de tumores cerebrales infantiles, visite rawoodfoundation.org.<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div\n        class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline\"\n        data-test=\"image-block-inline-outer-wrapper\"\n    ><\/p>\n<figure\n            class=\"sqs-block-image-figure              intrinsic\"\n            style=\"max-width:960px;\"\n        ><\/p>\n<div\n\n\n              class=\"image-block-wrapper\"\n              data-animation-role=\"image\"\n\n  data-animation-override\n\n><\/p>\n<div class=\"sqs-image-shape-container-element              has-aspect-ratio\" style=\"                position: relative;                  padding-bottom:75%;                overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black);              \"\n              ><\/p>\n<p>                  <noscript><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1494511971753-57305EMLO3419XMIN8WI\/image-asset.jpeg\" alt=\"Defensores de la investigaci\u00f3n sobre tumores cerebrales de todo el pa\u00eds se reunieron en el Congreso para apoyar las asignaciones a la investigaci\u00f3n m\u00e9dica y hablar a favor de la Ley STAR sobre el c\u00e1ncer infantil. Foto cortes\u00eda de la National Brain Tumor Society.\" \/><\/noscript><img decoding=\"async\" class=\"thumb-image\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1494511971753-57305EMLO3419XMIN8WI\/image-asset.jpeg\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/1494511971753-57305EMLO3419XMIN8WI\/image-asset.jpeg\" data-image-dimensions=\"960x720\" data-image-focal-point=\"0.5,0.5\" alt=\"Defensores de la investigaci\u00f3n sobre tumores cerebrales de todo el pa\u00eds se reunieron en el Congreso para apoyar las asignaciones a la investigaci\u00f3n m\u00e9dica y hablar a favor de la Ley STAR sobre el c\u00e1ncer infantil. Foto cortes\u00eda de la National Brain Tumor Society.\" data-load=\"false\" data-image-id=\"59147163197aeab3e2485e5b\" data-type=\"image\" \/><\/p><\/div>\n<\/p><\/div><figcaption class=\"image-caption-wrapper\">\n<div class=\"image-caption\">\n<p>Defensores de la investigaci\u00f3n sobre tumores cerebrales de todo el pa\u00eds se reunieron en el Congreso para apoyar las asignaciones a la investigaci\u00f3n m\u00e9dica y hablar a favor de la Ley STAR sobre el c\u00e1ncer infantil. Foto cortes\u00eda de la National Brain Tumor Society.<\/p>\n<\/div>\n<\/figcaption><\/figure>\n<\/p><\/div>","protected":false},"excerpt":{"rendered":"<p>Washington, D.C. - Amy Wood, directora de la Fundaci\u00f3n Raymond A. Wood, se uni\u00f3 al contingente de Maryland que acudi\u00f3 el martes a \"Head to the Hill\" con la National Brain Tumor Society para abogar por una legislaci\u00f3n que financie la investigaci\u00f3n sobre tumores cerebrales. Wood es madre de Alex, de 6 a\u00f1os, superviviente de un tumor cerebral y alumno de preescolar en la Ocean City Elementary School.<\/p>","protected":false},"author":6,"featured_media":5594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[41,1],"tags":[],"class_list":["post-10","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-uncategorized","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33","no-featured-image-padding"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>RAWF Director &quot;Heads to the Hill&quot; - Raymond A. 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