{"id":7444,"date":"2023-07-20T15:51:54","date_gmt":"2023-07-20T15:51:54","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/?page_id=7444"},"modified":"2023-07-25T16:58:53","modified_gmt":"2023-07-25T16:58:53","slug":"rugir-por-raro","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/es\/roar-for-rare\/","title":{"rendered":"Rugir por Rare"},"content":{"rendered":"<h2 class=\"wp-block-heading\">Ruge con nosotros en apoyo de los supervivientes de tumores cerebrales<\/h2>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p><strong>Imag\u00ednese<\/strong> un hambre que nunca se acaba por mucho que comas.&nbsp;<\/p>\n\n\n\n<p><strong>Imag\u00ednese<\/strong> estar deshidratado pero nunca sentir sed.<\/p>\n\n\n\n<p><strong>Imag\u00ednese<\/strong> luchando contra la hipotermia, mientras est\u00e1 perfectamente caliente dentro de su casa.&nbsp;<\/p>\n\n\n\n<p><strong>Imag\u00ednese<\/strong> experimentando convulsiones por oscilaciones de sodio que no tiene forma de detectar.&nbsp;<\/p>\n\n\n\n<p>Para la mayor\u00eda de nosotros, estas experiencias son inimaginables. Pero para los rostros que ven aqu\u00ed -los supervivientes de tumores cerebrales hipotal\u00e1mico-hipofisarios poco frecuentes- son realidades cotidianas.&nbsp;<\/p>\n\n\n\n<p>Las familias, cuidadores y colaboradores de la Fundaci\u00f3n Raymond A. Wood luchan incansablemente (\u00a1y a gritos!) para cambiar la realidad cotidiana de los supervivientes y mejorar su calidad de vida. Durante los pr\u00f3ximos <strong>5 a\u00f1os<\/strong>estamos abordando <strong>5 grandes objetivos<\/strong> que no s\u00f3lo aborden esos retos cotidianos, sino que tambi\u00e9n introduzcan cambios a largo plazo en la forma de gestionar esta afecci\u00f3n.&nbsp;<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"425\" height=\"531\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/projects.jpg\" alt=\"RAWF Roar for Rare Projects\" class=\"wp-image-7445\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/projects.jpg 425w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/projects-240x300.jpg 240w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/projects-10x12.jpg 10w\" sizes=\"(max-width: 425px) 100vw, 425px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<p><strong>Pero no podemos hacerlo solos. Nuestros rugidos s\u00f3lo pueden hacerse m\u00e1s fuertes y resonar con m\u00e1s gente dispuesta a rugir con tu ayuda. Con tu voz. Con tu apoyo.&nbsp;<\/strong><\/p>\n\n\n\n<a class=\"gb-button gb-button-a85de0d4 gb-button-text\" href=\"https:\/\/givebutter.com\/roarforrare\" target=\"_blank\" rel=\"noopener noreferrer\">Hacer un donativo<\/a>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center\">Descubra por qu\u00e9 rugimos<\/h3>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"La Fundaci\u00f3n Raymond A. Wood es una organizaci\u00f3n de defensa de los pacientes de enfermedades raras dirigida por padres.\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/zgXSFWoGRJs?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Objetivos, calendario y progresos<\/h3>\n\n\n\n<p>La Fundaci\u00f3n Raymond A. Wood est\u00e1 en proceso de recaudar<strong> $500,000<\/strong> para financiar<strong> 5 proyectos cr\u00edticos<\/strong> en los pr\u00f3ximos <strong>5 a\u00f1os<\/strong>. Juntos, estos servicios inmediatos y las inversiones a largo plazo mejorar\u00e1n dr\u00e1sticamente la calidad de vida de los supervivientes de tumores cerebrales hipotal\u00e1mico-hipofisarios.<br><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">\u00bfRugir\u00e1s con nosotros?&nbsp;<\/h4>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"178\" height=\"161\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/roar3.2.png\" alt=\"Objetivo Roar: financiar analizadores de sangre port\u00e1tiles\" class=\"wp-image-7446\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar3.2.png 178w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar3.2-13x12.png 13w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h3 class=\"wp-block-heading\">A\u00f1o 1<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\">$100.000 para aumentar nuestra distribuci\u00f3n de analizadores de sangre port\u00e1tiles esenciales para los supervivientes necesitados y ayudar a prevenir las convulsiones por depleci\u00f3n de sodio.&nbsp;<\/h4>\n\n\n\n<p><strong>Actualizaci\u00f3n AF 2023: 90% financiado<\/strong><\/p>\n\n\n\n<p>Desde su creaci\u00f3n, ya hemos proporcionado m\u00e1s de 25 analizadores de sangre port\u00e1tiles a supervivientes de tumores cerebrales. Estos costosos dispositivos de uso hospitalario son actualmente la \u00fanica soluci\u00f3n para compensar las innumerables visitas al laboratorio, evitar los viajes a urgencias y reducir los ingresos hospitalarios de los supervivientes que padecen deficiencia de arginina vasopresina (diabetes ins\u00edpida). Cuando su hijo sufre un ataque en sus brazos debido a la ca\u00edda en picado de los niveles de sodio, ya es demasiado tarde. Dotar a una familia de uno de estos dispositivos puede significar la diferencia entre la vida y la muerte.&nbsp;<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/givebutter.com\/roarforrare\" target=\"_blank\" rel=\"noreferrer noopener\">Financiar la asistencia a domicilio<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:45px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"178\" height=\"161\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/roar1.1.png\" alt=\"Medidor de sodio de uso dom\u00e9stico\" class=\"wp-image-7448\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar1.1.png 178w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar1.1-13x12.png 13w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h3 class=\"wp-block-heading\">A\u00f1os 2-3<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\">$200.000 para desarrollar un medidor de sodio de uso dom\u00e9stico para tratar la deficiencia de arginina vasopresina <\/h4>\n\n\n\n<p><strong>Actualizaci\u00f3n AF 2023: 25% financiados<\/strong><\/p>\n\n\n\n<p>Al tiempo que distribuimos analizadores de sangre de calidad hospitalaria para su uso en tiempo real, estamos abordando el problema desde las fases iniciales. Estamos colaborando con socios de investigaci\u00f3n y desarrollo en un prototipo que llevaremos al mercado. Disponer de un medidor de sodio casero y f\u00e1cil de usar ayudar\u00e1 a hacer m\u00e1s llevadera la deficiencia de arginina vasopresina (diabetes ins\u00edpida) al ofrecer a los supervivientes y a sus cuidadores una forma de detectar las oscilaciones de sodio mucho m\u00e1s accesible que la que ofrecen los limitados recursos actuales. Este dispositivo servir\u00eda a nuestros pacientes y a otros que sufren otras afecciones relacionadas con el sodio.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"178\" height=\"161\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/roar2.2.png\" alt=\"Ayudas a la investigaci\u00f3n\" class=\"wp-image-7447\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar2.2.png 178w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar2.2-13x12.png 13w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h4 class=\"wp-block-heading\">$50.000 para acelerar la investigaci\u00f3n sobre el tratamiento del craneofaringioma<\/h4>\n\n\n\n<p><strong>Actualizaci\u00f3n AF 2023: 50% financiado<\/strong><\/p>\n\n\n\n<p>El dinero recaudado se destinar\u00e1 a la Children's Brain Tumor Network para ampliar el biobanco de craneofaringiomas y apoyar la secuenciaci\u00f3n de datos gen\u00f3micos de craneofaringiomas. Estos datos se ponen a disposici\u00f3n de los investigadores y pueden acelerar los plazos de investigaci\u00f3n y aumentar el potencial de avances en los tratamientos.<\/p>\n\n\n\n<a class=\"gb-button gb-button-3e3acc0c gb-button-text\" href=\"https:\/\/givebutter.com\/roarforrare\" target=\"_blank\" rel=\"noopener noreferrer\">Financiar la investigaci\u00f3n cl\u00ednica<\/a>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:45px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"178\" height=\"161\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/roar5.png\" alt=\"Investigaci\u00f3n sobre biobancos\" class=\"wp-image-7449\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar5.png 178w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar5-13x12.png 13w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h3 class=\"wp-block-heading\">A\u00f1os 4-5<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\">$100.000 para distribuir subvenciones que financien la investigaci\u00f3n cient\u00edfica y cl\u00ednica de prueba de concepto.&nbsp;<\/h4>\n\n\n\n<p>Conseguir que m\u00e1s investigadores participen en la identificaci\u00f3n de distintos enfoques para tratar los tumores cerebrales hipotal\u00e1mico-hipofisarios puede cambiar el curso de los devastadores efectos que dejan de por vida en los supervivientes. Estas becas de investigaci\u00f3n se destinar\u00e1n a dilucidar su causa subyacente e identificar nuevas opciones de tratamiento.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"gb-block-image gb-block-image-93d8fa85\"><img decoding=\"async\" width=\"178\" height=\"161\" class=\"gb-image gb-image-93d8fa85\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/roar4.2.png\" alt=\"Centro Cranio\" title=\"rugido4.2\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar4.2.png 178w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/roar4.2-13x12.png 13w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h4 class=\"wp-block-heading\">$50.000 para aumentar nuestra labor educativa y de divulgaci\u00f3n a trav\u00e9s de un centro web con verificaci\u00f3n m\u00e9dica llamado craniohub.org&nbsp;<\/h4>\n\n\n\n<p>Conseguir que m\u00e1s investigadores participen en la identificaci\u00f3n de distintos enfoques para tratar los tumores cerebrales hipotal\u00e1mico-hipofisarios puede cambiar el curso de los devastadores efectos que dejan de por vida en los supervivientes. Estas becas de investigaci\u00f3n se destinar\u00e1n a dilucidar su causa subyacente e identificar nuevas opciones de tratamiento.<\/p>\n\n\n\n<a class=\"gb-button gb-button-cd5abd26 gb-button-text\" href=\"https:\/\/givebutter.com\/roarforrare\" target=\"_blank\" rel=\"noopener noreferrer\">Financiar el cambio transformador<\/a>\n<\/div>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/darren.png\" alt=\"Darren, superviviente de un tumor cerebral\" class=\"wp-image-7454\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/darren.png 400w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/darren-300x300.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/darren-150x150.png 150w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/darren-12x12.png 12w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/darren-330x330.png 330w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure><\/div>\n\n\n<h3 class=\"wp-block-heading\"><strong>Rugido para Darren<\/strong><\/h3>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\"Como Darren perdi\u00f3 la lengua y est\u00e1 conectado a una sonda de alimentaci\u00f3n, no sabemos si necesita agua. Tenemos que comprobarlo regularmente para asegurarnos de que todo va bien\".<\/p>\n<cite>Li Li, la madre de Darren<\/cite><\/blockquote>\n\n\n\n<p><\/p>\n\n\n\n<p>A finales de 2018, a Darren le diagnosticaron un craneofaringioma. Tras el tratamiento, Darren sufri\u00f3 un derrame cerebral masivo que merm\u00f3 gravemente sus funciones. Durante las largas estancias en el hospital, Darren tuvo que someterse a controles regulares de sodio en sangre y el endocrin\u00f3logo que le atendi\u00f3 abog\u00f3 por que la familia recibiera un analizador de sangre port\u00e1til al ser dado de alta para ayudarles a gestionar su cuidado. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/jessica.png\" alt=\"Jessica, superviviente de un tumor cerebral\" class=\"wp-image-7455\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/jessica.png 400w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/jessica-300x300.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/jessica-150x150.png 150w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/jessica-12x12.png 12w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/jessica-330x330.png 330w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Rugido por Jessica<\/strong><\/h3>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\"Jess a\u00fan vive conmigo, y este \u00faltimo a\u00f1o ha sido una lucha para ambos. \u00a1No podemos agradecerle bastante por darnos la oportunidad de utilizar el equipo! \u00a1Esperemos que esto ayude a mantenerla fuera del hospital!<\/p>\n\n\n\n<p><\/p>\n<cite><em>Betty, la madre de Jessica<\/em><\/cite><\/blockquote>\n\n\n\n<p>A Jessica, de 38 a\u00f1os, le diagnosticaron un tumor cerebral germinal a los 8 a\u00f1os y fue tratada con extirpaci\u00f3n quir\u00fargica y radioterapia. El a\u00f1o pasado, Jessica sufri\u00f3 dos infartos cerebrales que agravaron la situaci\u00f3n en una zona del cerebro ya comprometida. Ha tenido m\u00faltiples complicaciones con niveles de sodio en sangre por debajo de 120 o por encima de 160 (el rango est\u00e1ndar es 135-145), lo que ha provocado numerosas y extensas hospitalizaciones seg\u00fan su endocrin\u00f3logo.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/gadiel.png\" alt=\"Gadiel, superviviente de un tumor cerebral\" class=\"wp-image-7456\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/gadiel.png 400w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/gadiel-300x300.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/gadiel-150x150.png 150w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/gadiel-12x12.png 12w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2023\/07\/gadiel-330x330.png 330w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Rugido para Gadiel<\/strong><\/h3>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\"Esto me da tranquilidad como padre al saber los niveles exactos de sodio de mi hijo. Adem\u00e1s, al tratarse de un pinchazo en el dedo, permite que mi hijo cumpla en hacerse esta toma y evitar ir a urgencias a que le hagan una lectura cuando noto una diferencia en mi hijo.\"<\/p>\n<cite>Heyde, la madre de Gadiel<\/cite><\/blockquote>\n\n\n\n<p>Gadiel es descrito como un ni\u00f1o cari\u00f1oso y fuerte de seis a\u00f1os. El 6\/3\/2020, tuvo que someterse a una operaci\u00f3n de 10 horas para extirparle un tumor en la pituitaria que casi le cuesta la vida.  Heyde dice que Gadiel es un \"palo duro\" cuando se trata de sacarle sangre. Tiene que ser hospitalizado para cada extracci\u00f3n de laboratorio porque se tarda unas dos horas en recoger una muestra de sangre para analizarla. Dice que, de todos los diagn\u00f3sticos y desaf\u00edos, las extracciones de sangre son las peores para \u00e9l.<\/p>\n<\/div>\n<\/div>\n\n\n<div class=\"gb-container gb-container-d4e23f3b\">\n\n<a class=\"gb-button gb-button-5d81ee85 gb-button-text\" href=\"https:\/\/givebutter.com\/roarforrare\" target=\"_blank\" rel=\"noopener noreferrer\">Ruge con nosotros<\/a>\n\n<\/div>\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h5 class=\"wp-block-heading\">\u00a1Comparta su rugido!<\/h5>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Organice su propia campa\u00f1a de recaudaci\u00f3n de fondos Roar for Rare y ay\u00fadenos a alcanzar nuestros objetivos<\/strong><\/h4>\n\n\n\n<p>Amplifique su rugido y mejore las vidas de los supervivientes de tumores cerebrales organizando su propia recaudaci\u00f3n de fondos para cumplea\u00f1os, aniversarios de diagn\u00f3sticos o para dar a conocer nuestra misi\u00f3n.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Es f\u00e1cil empezar y tener un impacto inmediato. He aqu\u00ed c\u00f3mo:<\/h4>\n\n\n\n<ol class=\"wp-block-list\">\n<li>Comprom\u00e9tete a recaudar $1.000 o una cantidad significativa para ti<\/li>\n\n\n\n<li><a href=\"https:\/\/secure.givelively.org\/donate\/raymond-a-wood-foundation-inc\/roar-with-us\/fundraisers\/options\" target=\"_blank\" rel=\"noreferrer noopener\">Visite este enlace <\/a>y haga clic en el bot\u00f3n que dice <strong>\"Quiero recaudar fondos para esto\".<\/strong><\/li>\n\n\n\n<li>Empieza a correr la voz sobre lo que est\u00e1s haciendo y POR QU\u00c9<\/li>\n\n\n\n<li>Ponte en contacto con tus contactos y an\u00edmales a apoyar tu campa\u00f1a. Desde el env\u00edo de correos electr\u00f3nicos y las llamadas telef\u00f3nicas hasta la publicaci\u00f3n en las redes sociales, anime a la gente a dar compartiendo <strong>por qu\u00e9 RUGES.<\/strong><\/li>\n<\/ol>\n\n\n\n<p>\u00bfNecesita ayuda para empezar? Consulte nuestra <strong>Herramientas para recaudar fondos<\/strong> abajo. Tenemos todo lo que necesitas para que tu recaudaci\u00f3n de fondos sea un \u00e9xito y tu ROAR suene lo m\u00e1s alto posible.<\/p>\n\n\n\n<p>Herramientas para recaudar fondos<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/youtu.be\/vXHnR9jZyj4\" target=\"_blank\" rel=\"noreferrer noopener\">C\u00f3mo organizar su recaudaci\u00f3n de fondos<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/SharingYourWhy_RAWF_2022GivingTuesday.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Compartir tus razones<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/live-rawf.pantheonsite.io\/wp-content\/uploads\/2023\/07\/FundraisingTips_RAWF_2022GivingTuesday.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Consejos para recaudar fondos<\/a><\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/givebutter.com\/MO7Adn\" target=\"_blank\" rel=\"noreferrer noopener\">Organizar una recaudaci\u00f3n de fondos<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image\" id=\"yui_3_17_2_1_1689863648820_234\"><img decoding=\"async\" src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/587bc3d946c3c4be42a60e48\/90bae4e7-b0ec-48e6-9bb9-5f01cb01acf6\/lion.jpg\" alt=\"\"\/><\/figure>\n<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Ruge con nosotros en apoyo de los supervivientes de tumores cerebrales Imagina un hambre que nunca termina ... <a title=\"Rugir por Rare\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/es\/roar-for-rare\/\" aria-label=\"Leer m\u00e1s sobre Rugido de Rareza\">Seguir leyendo<\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":56,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":{"0":"post-7444","1":"page","2":"type-page","3":"status-publish","5":"no-featured-image-padding"},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Roar for Rare - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/rugir-por-raro\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Roar for Rare - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Roar With Us In Support of Brain Tumor Survivors Imagine a hunger that never ends ... Read more\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/es\/rugir-por-raro\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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