{"id":5152,"date":"2023-05-16T14:21:41","date_gmt":"2023-05-16T14:21:41","guid":{"rendered":"https:\/\/live-rawf.pantheonsite.io\/?page_id=5152"},"modified":"2024-04-09T17:51:33","modified_gmt":"2024-04-09T17:51:33","slug":"mision-vision","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/es\/mission-vision\/","title":{"rendered":"Misi\u00f3n y visi\u00f3n"},"content":{"rendered":"

Acerca de la Fundaci\u00f3n Raymond A. Wood<\/strong><\/h2>\n\n\n\n

La Fundaci\u00f3n Raymond A. Wood es una organizaci\u00f3n de defensa de los pacientes de enfermedades raras dirigida por padres y pacientes, dedicada a capacitar a los supervivientes de tumores cerebrales de craneofaringioma e hipot\u00e1lamo-hipofisario. La misi\u00f3n de la Fundaci\u00f3n Raymond A. Wood es impulsar la investigaci\u00f3n y defender los resultados del tratamiento para mejorar la calidad de vida de los supervivientes de tumores cerebrales hipotal\u00e1mico-hipofisarios.<\/p>\n\n\n\n

Abogar por un futuro mejor<\/strong><\/p>\n\n\n\n

Fundada en 2017 por unos padres que experimentaron personalmente los retos del craneofaringioma, la Fundaci\u00f3n Raymond A. Wood est\u00e1 impulsada por un profundo compromiso de marcar la diferencia. Al ser testigos de la capacidad de recuperaci\u00f3n de su hijo frente a esta enfermedad rara, crearon la fundaci\u00f3n para ser un faro de esperanza y apoyo para otros que se enfrentan a batallas similares.<\/p>\n\n\n\n

Una voz para la comunidad de pacientes<\/strong><\/p>\n\n\n\n

Somos un poderoso defensor de la comunidad de pacientes con craneofaringioma y tumores cerebrales hipot\u00e1lamo-hipofisarios en el \u00e1mbito de la investigaci\u00f3n y la asistencia sanitaria. A trav\u00e9s de nuestros esfuerzos de defensa, nos esforzamos por amplificar las voces de los supervivientes y cuidadores, garantizando que sus perspectivas sean escuchadas y valoradas.<\/p>\n\n\n\n

Capacitar a supervivientes y cuidadores<\/strong><\/p>\n\n\n\n

En el centro de nuestra misi\u00f3n est\u00e1 la creencia de que los supervivientes y los cuidadores tienen el poder de ser sus mejores defensores. Nos comprometemos a proporcionarles los conocimientos, recursos y herramientas necesarios para afrontar las complejidades de estas enfermedades. A trav\u00e9s de la educaci\u00f3n y el apoyo, capacitamos a las personas para que asuman un papel activo en el proceso de atenci\u00f3n sanitaria.<\/p>\n\n\n\n

Soluciones pioneras para retos complejos<\/strong><\/p>\n\n\n\n

El craneofaringioma y los tumores cerebrales hipot\u00e1lamo-hipofisarios presentan retos polifac\u00e9ticos que afectan significativamente a la calidad de vida. La Fundaci\u00f3n Raymond A. Wood se dedica a mejorar los resultados de los tratamientos y a buscar soluciones innovadoras. Mediante asociaciones estrat\u00e9gicas y financiaci\u00f3n, impulsamos iniciativas de investigaci\u00f3n destinadas a mejorar la vida de los afectados por estas enfermedades.<\/p>\n\n\n\n

Juntos, prosperamos<\/strong><\/p>\n\n\n\n

La Fundaci\u00f3n Raymond A. Wood es un faro de esperanza, unidad y resistencia para la comunidad de los tumores cerebrales craneofaringiomas e hipot\u00e1lamo-hipofisarios. Juntos, trabajamos por un futuro en el que los supervivientes no s\u00f3lo superen sus retos, sino que prosperen con un sentido renovado de prop\u00f3sito y posibilidad.<\/p>\n\n\n\n

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<\/div>\n\n\n\n
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\"Alex
Raymond Alexander Wood, 12 a\u00f1os, diagnosticado a los 4 a\u00f1os.<\/figcaption><\/figure>\n<\/div>\n\n\n\n
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Misi\u00f3n <\/h3>\n\n\n\n

La misi\u00f3n de la Fundaci\u00f3n Raymond A. Wood es impulsar la investigaci\u00f3n y defender los resultados del tratamiento para mejorar la calidad de vida de los supervivientes de tumores cerebrales hipotal\u00e1mico-hipofisarios.<\/p>\n\n\n\n

Visi\u00f3n <\/h3>\n\n\n\n

Garantizar que los supervivientes de tumores cerebrales hipotal\u00e1mico-hipofisarios vivan una vida sin el impacto de la enfermedad.<\/p>\n<\/div>\n<\/div>\n\n\n

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Valores fundamentales y principios rectores<\/h2>\n\n\n
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Creatividad e innovaci\u00f3n<\/strong><\/h4>\n\n\n\n

Buscar nuevos enfoques para crear soluciones o mejorar los sistemas para servir mejor a la comunidad.<\/p>\n\n<\/div><\/div>\n\n

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Integridad y transparencia<\/strong><\/h4>\n\n\n\n

Inspirar confianza mediante una comunicaci\u00f3n abierta interna y externamente. <\/p>\n\n<\/div><\/div>\n<\/div>\n\n

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Empat\u00eda, atenci\u00f3n y compasi\u00f3n<\/strong><\/strong><\/strong><\/h4>\n\n\n\n

Siempre desde la comprensi\u00f3n de los retos a los que se enfrenta la comunidad.<\/p>\n\n<\/div><\/div>\n\n

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\u00c9tica y confidencialidad<\/strong><\/strong><\/strong><\/h4>\n\n\n\n

Mantener la confidencialidad de toda la informaci\u00f3n relativa a pacientes, supervivientes, cuidadores y profesionales sanitarios.<\/p>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n

<\/div>","protected":false},"excerpt":{"rendered":"

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