{"id":14093,"date":"2025-06-25T15:47:37","date_gmt":"2025-06-25T15:47:37","guid":{"rendered":"https:\/\/www.rawoodfoundation.org\/?page_id=14093"},"modified":"2026-02-18T19:12:03","modified_gmt":"2026-02-18T19:12:03","slug":"conferencia-2025","status":"publish","type":"page","link":"https:\/\/www.rawoodfoundation.org\/es\/2025conference\/","title":{"rendered":"Conferencia familiar sobre tumores cerebrales hipofisarios"},"content":{"rendered":"<h3 class=\"wp-block-heading\">Capacitar a supervivientes, familias y cuidadores<\/h3>\n\n\n\n<p><strong>15-16 de noviembre de 2025 - Hospital Infantil de Filadelfia<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"851\" height=\"315\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1.png\" alt=\"\" class=\"wp-image-14095\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1.png 851w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-300x111.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-768x284.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/November-15-16-2025-Philadelphia-1-18x7.png 18w\" sizes=\"(max-width: 851px) 100vw, 851px\" \/><\/figure>\n\n\n\n<div style=\"height:32px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h4 class=\"wp-block-heading\">\u00a1Gracias por hacerlo inolvidable!<\/h4>\n\n\n\n<p>Los d\u00edas 15 y 16 de noviembre de 2025, m\u00e1s de 100 pacientes, cuidadores, investigadores y m\u00e9dicos se reunieron en Filadelfia en la Conferencia Familiar sobre Tumores Cerebrales Hipofisarios 2025 de la Fundaci\u00f3n Raymond A. Wood, un intenso fin de semana de formaci\u00f3n, conexi\u00f3n y comunidad.<\/p>\n\n\n\n<p>El tema de este a\u00f1o, <em>\"Juntos en el conocimiento, m\u00e1s fuertes en la comunidad\"<\/em> se celebraron debates vitales sobre investigaci\u00f3n, calidad de vida y defensa de los derechos, adem\u00e1s de tiempo para compartir entre nosotros nuestras experiencias, nuestras preocupaciones y nuestras esperanzas.<br><br>Estamos profundamente agradecidos a todos los que han hecho posible el \u00e9xito de este acto, en especial a los supervivientes y familiares que han compartido sus experiencias, a los expertos que han ofrecido sus puntos de vista y a los patrocinadores y donantes que han contribuido a hacerlo posible. Esperamos con impaciencia futuras reuniones para continuar las conversaciones.<\/p>\n\n\n\n<a class=\"gb-button gb-button-76878432 gb-button-text\" href=\"https:\/\/rawoodfoundation.uscreen.io\/checkout\/new?o=220259\" target=\"_blank\" rel=\"noopener noreferrer\">Acceso a las grabaciones de la conferencia<\/a>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h5 class=\"wp-block-heading\">Pr\u00f3xima Conferencia: Noviembre 2027<\/h5>\n\n\n\n<p>Vuelva a visitarnos para estar al d\u00eda de la pr\u00f3xima conferencia o suscr\u00edbase a nuestra lista de correo en la parte inferior de esta p\u00e1gina para recibir actualizaciones en su bandeja de entrada.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h4 class=\"wp-block-heading\">Conferencia familiar sobre tumores cerebrales hipofisarios: Un viaje fotogr\u00e1fico<\/h4>\n\n\n\n<p>Este pase de diapositivas capta el coraz\u00f3n de nuestro tiempo juntos: momentos de conexi\u00f3n, colaboraci\u00f3n y atenci\u00f3n. Desde presentaciones impactantes hasta conversaciones significativas y sonrisas compartidas, estas im\u00e1genes reflejan el esp\u00edritu de comunidad y el compromiso de mejorar vidas a trav\u00e9s de la investigaci\u00f3n, el tratamiento y el apoyo.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"2025 Conferencia Familiar sobre Tumores Cerebrales Hipofisarios: Un viaje fotogr\u00e1fico\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/I5pISJWbqJo?feature=oembed&#038;enablejsapi=1&#038;origin=https:\/\/www.rawoodfoundation.org\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h4 class=\"wp-block-heading\">Programa de la Conferencia 2025<\/h4>\n\n\n\n<h5 class=\"wp-block-heading\"><strong>S\u00e1bado, 15 de noviembre | The Hub for Clinical Collaboration, Hospital Infantil de Filadelfia <\/strong><\/h5>\n\n\n\n<p>Buenos d\u00edas<\/p>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td>&nbsp;8:00 - 9:00<\/td><td><strong>Inscripci\u00f3n y desayuno<\/strong><\/td><\/tr><tr><td>9:00 - 9:15<\/td><td><strong>Bienvenido<\/strong> Shana McCormack, MD, MTR, Hospital Infantil de Filadelfia Amy Wood, Fundaci\u00f3n Raymond A. Wood<\/td><\/tr><tr><td>9:15 - 10:15 <br>Sesi\u00f3n 1 - Discurso de apertura<\/td><td><strong>Costes y cobertura:<\/strong> <strong>Navegar por las dificultades financieras en el ca\u00f3tico clima actual<br><\/strong>Fran Castellow, MSEd, Presidente, Operaciones,<br>Fundaci\u00f3n del Defensor del Paciente<\/td><\/tr><tr><td>10h15 - 10h30<\/td><td><strong>Pausa Cerebral<\/strong><\/td><\/tr><tr><td>10:30 - 11:10 <br>Sesi\u00f3n 2<\/td><td><strong>\u00daltimos hallazgos en ensayos cl\u00ednicos e investigaci\u00f3n<\/strong> <br>Shana McCormack, MD, MTR Hospital Infantil de Filadelfia<\/td><\/tr><tr><td>11:10 - 11:20<\/td><td><strong>Patrocinador destacado<\/strong> <br>Kristina Shields<br>Rhythm Pharmaceuticals<\/td><\/tr><tr><td>11:30 - 12:00 Sesi\u00f3n 3<\/td><td><strong>Enfoques para el tratamiento de tumores<br><\/strong>Dra. Cassie Kline Hospital Infantil de Filadelfia<\/td><\/tr><tr><td>12:00pm - 1:00pm<\/td><td><strong>Almuerzo y trabajo en red<br>Demostraciones de dosificaci\u00f3n del estr\u00e9s<\/strong><br>Ryan LaBella, LPN<br>Amanda Reyneuse<br>Jennifer Jerusik<\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p><strong>Por la tarde<\/strong><\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<figure class=\"wp-block-table\"><table><tbody><tr><td>13:00 - 13:50<br>Sesi\u00f3n 5<\/td><td><strong>Sesiones de trabajo<br>Sustituci\u00f3n de hormonas sexuales masculinas&nbsp;<\/strong> <br>Dr. Christopher Gibson<br>Hospital Infantil de Filadelfia <br><strong>Sustituci\u00f3n de hormonas sexuales femeninas<\/strong> <br>Dra. Jacquelyn Hatch-Stein<br>Hospital Infantil de Filadelfia <br><strong>Problemas endocrinos en adultos <\/strong><br>Dr. Sanjay Jumani<br>Universidad Thomas Jefferson<\/td><\/tr><tr><td>13:50 - 14:00<\/td><td><strong>Pausa Cerebral<\/strong><\/td><\/tr><tr><td>14:00 - 15:00 <br>Sesi\u00f3n 6<\/td><td><strong>Obesidad Hipotal\u00e1mica: Manejo cl\u00ednico y<br>Enfoques nutricionales&nbsp;<\/strong> <br>Jennifer Miller, MD Michael Tan, MS, RD, LDN<br>Universidad de Florida<\/td><\/tr><tr><td>15:00 - 15:15<\/td><td><strong>Foto de grupo<\/strong><\/td><\/tr><tr><td>15:15 - 16:00 <br>Sesi\u00f3n 7<\/td><td><strong>Control de los d\u00e9ficits de IA, AVP-D y GH<br><\/strong>Craig Alter, MD Hospital Infantil de Filadelfia<\/td><\/tr><tr><td>16:00 - 17:00<\/td><td><strong>Panel general de preguntas y respuestas y clausura<\/strong><\/td><\/tr><\/tbody><\/table><\/figure>\n<\/div>\n<\/div>\n\n\n\n<h4 class=\"wp-block-heading\"><strong>Domingo, 16 de noviembre | 8:00 - 11:30, The Study at University City<\/strong><\/h4>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td><br>8 de la ma\u00f1ana<br><\/td><td><strong>Desayuno&nbsp;<\/strong><\/td><\/tr><tr><td>8:30 - 9:30<br><\/td><td><strong>Navegar por el duelo: Una charla junto al fuego<br><\/strong>Holly Gainsboro, Especialista en Apoyo en el Duelo Moderada por Malikah Kelly, Coordinadora de Divulgaci\u00f3n, RAWF<\/td><\/tr><tr><td>9:30-10:00<br><\/td><td><strong>Impulsar el descubrimiento: Novedades de RAWF en materia de investigaci\u00f3n estrat\u00e9gica<br><\/strong>Nathalie Kayadjanian, Doctora, Directora Cient\u00edfica, RAWF<\/td><\/tr><tr><td>10:00 - 11:15<br><\/td><td><strong>Mesa redonda de supervivientes y cuidadores<\/strong> <br>Moderado por Eugenie Hsu, Ph.D., Presidenta del Consejo, RAWF<\/td><\/tr><tr><td>11:15 -<br>11h30<\/td><td><strong>Clausura y resumen de la Conferencia<\/strong> <br>Amy Wood, Directora Ejecutiva, RAWF<br><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading has-text-align-center\">Gracias a nuestros patrocinadores<\/h3>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PATROCINADOR PLATINO<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img decoding=\"async\" width=\"1024\" height=\"271\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1024x271.png\" alt=\"Logotipo de Rhythm Phamaceuticals\" class=\"wp-image-14097\" style=\"width:437px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1024x271.png 1024w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-300x80.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-768x204.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-1536x407.png 1536w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019-18x5.png 18w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/rhythm-logo-2019.png 2000w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PATROCINADOR DE ORO<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img decoding=\"async\" width=\"666\" height=\"141\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark.png\" alt=\"Logotipo de Aardvark Therapeutics\" class=\"wp-image-14098\" style=\"width:375px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark.png 666w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark-300x64.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/aardvark-18x4.png 18w\" sizes=\"(max-width: 666px) 100vw, 666px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PATROCINADOR DE PLATA<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img decoding=\"async\" width=\"1024\" height=\"175\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1024x175.png\" alt=\"Logotipo de Eton Pharmaceuticals\" class=\"wp-image-14099\" style=\"width:336px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1024x175.png 1024w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-300x51.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-768x131.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-1536x263.png 1536w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-2048x350.png 2048w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EtonPharma-Logo-Horizontal-Color-Vector-18x3.png 18w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h5 class=\"wp-block-heading has-text-align-center\"><strong>PATROCINADOR DE BRONCE<\/strong><\/h5>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img decoding=\"async\" width=\"800\" height=\"467\" src=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB.png\" alt=\"Logotipo de la Fundaci\u00f3n EveryLife\" class=\"wp-image-14100\" style=\"width:201px;height:auto\" srcset=\"https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB.png 800w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-300x175.png 300w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-768x448.png 768w, https:\/\/www.rawoodfoundation.org\/wp-content\/uploads\/2025\/06\/EveryLifeLOGO_TRANSPARENT_RGB-18x12.png 18w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/figure><\/div>","protected":false},"excerpt":{"rendered":"<p>Empoderamiento de supervivientes, familias y cuidadores 15 y 16 de noviembre de 2025 - Children's Hospital of Philadelphia Gracias ... <a title=\"Conferencia familiar sobre tumores cerebrales hipofisarios\" class=\"read-more\" href=\"https:\/\/www.rawoodfoundation.org\/es\/2025conference\/\" aria-label=\"Leer m\u00e1s sobre Conferencia familiar sobre tumores cerebrales hipofisarios\">Seguir leyendo<\/a><\/p>","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":12,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":{"0":"post-14093","1":"page","2":"type-page","3":"status-publish","5":"no-featured-image-padding"},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pituitary Brain Tumor Family Conference - Raymond A. Wood Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.rawoodfoundation.org\/es\/conferencia-2025\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pituitary Brain Tumor Family Conference - Raymond A. Wood Foundation\" \/>\n<meta property=\"og:description\" content=\"Empowering Survivors, Families &amp; Caregivers November 15\u201316, 2025 \u2022 Children\u2019s Hospital of Philadelphia Thank you ... Read more\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.rawoodfoundation.org\/es\/conferencia-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"Raymond A. 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